Cleveland Clinic Day 11

Thursday evening, week 2. Lisa went back on Trileptal last night, tapering upward to a full dose of 900mg this morning. The idea at this point is to…go home!

Yep. Given that we haven’t seen any seizure activity, we’re going to try dropping her medication down to just this one and get her back into her normal environment.

This falls squarely in the ‘double-edged sword’ territory. We’re very optimistic that she’s stabilized but like I said earlier, with her history, this feels very much like Russian Roulette.

And, there’s no easy or obvious way to talk about what we’re looking at. Miracle? Honeymoon period? Another morph in her symptoms (the first 5 years were mostly auras that affected her stomach and emotions)? If it’s a morph, when is the next one going to come? If it’s a miracle cure, why didn’t we at least get a letter from an angel giving us the ‘all clear’?

We’re easing our way into excitement – at least I am. I figure I’ll do the worrying and Lisa can enjoy the freedom. Whatever is happening, she’s about to enter a phase of her life in whch she’ll be much, much less medicated.

I’m expecting my posts in her will happen less regularly, at least posts related to Lisa’s health.  We’ll see. Maybe I can get the Music section up and going.  We’ll see.

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Cleveland Clinic Day 9

We’ve been completely off meds for about 2 days now. Lisa has had a very bad headache since last night, it got worse this morning but according to her, it didn’t feel like a seizure, maybe closer to migraines. She had dry heaves four times between 9:00a and noon but nothing showed up on the EEG.

We met with her primary doctor here, Dr. Kotagal, at around 10a. We agreed that we should keep her here for further observation, since we’ve come this far, if we start again some other time, we might have to repeat the several day wean off of her meds. Basically, our attitude right now is “we’ve come this far, let’s keep going.”

During the afternoon, they attempted to induce seizure in a couple of ways. One was to have her hyperventilate, but this didn’t produce any results. Then, they tried flashing a strobe light at various speeds a few inches from her face but again, no results.

Lisa was very, very exhausted this morning, she slept on and off until after 11a.m. We woke her to talk with the doctors and nurses, plus she was up four times with those little interruptions I mentioned above, but she was very bleary-eyed and out of it for most of that time. When she woke around noon, she looked much, much better.

It’s 9p now and she’s doing World History homework.

After that and a little algebra, she can start on eclipse, the third book in the hot new Stephenie Meyer series.