Cleveland Clinic Day 2 Info

This is actually being written the morning of day 3. Not that day 2 was eventful – it wasn’t.
The day consisted of Lisa laying in bed connected to the visual EEG machine and hoping for some seizure activity. The idea is to monitor these seizures to find out where they are originating. We’re assuming that everything originates from the site of the injury, but we need to make sure.
I spent the night back at the Ronald McDonald house, Jean stayed with Lisa. We learned last time that trading off kept us fresh. I spent most of Monday night learning about blog sites, beading, and reading about the WADA test and functional MRIs.
The WADA is a big subject right now in that Lisa is scheduled to have one on Wednesday but we don’t think it’s a good idea. Talking with Dr. Kotagal on Monday, it seems that if Lisa isn’t a candidate for surgery, there’s no real reason to have the test. Dr. Tuxhorn who is also working on the case, agreed that it was a good subject to reconsider – why do the test if Lisa won’t have the surgery?
Without going into a lot of detail (and given that I’m a layman explaining what he read in pamphlets and on the internet), it sounds like the two tests gather mostly the same data. The functional MRI seems to be the non-invasive alternative to the WADA. The WADA test involves entering through the femoral artery (in the thigh) with a catheter that then numbs each side of the brain successively for testing. The goal is to learn which hemisphere processes language and memory. From that, we should get a good sense of any risks involved with the surgery.
I tried explaining it to Lisa but I was a little careless with language and ended up making her more anxious, not less. I start with “they drill a small hole in your leg…” which was definitely the wrong way to start. While I was thinking of a tiny incision in the thigh, she was having flashbacks to Weird Al’s video for “Like A Surgeon” in which one of the docs is seen holding a power drill with a twelve-inch long 1/2″ bit, smiling maniacally as he zeroes in on a bull’s-eye painted on the patient. Bad choice of words, dad.
Allison, her Nurse Practitioner, came in later and explained it to her again, after which Lisa felt much more comfortable. Not looking-forward-to-it comfortable, but not dreading it either. She’s concerned it’s going to “feel weird”. Fair enough.
They did insert the sphenoidal electrodes as well. Lisa had these last time too. The doctor inserts a wire into the cheek just below the cheekbone on both sides. The sphenoidal electrodes gather information that the standard electrodes miss. Given the expected point of origin for Lisa’s seizure, this test is pretty much necessary.
AND, Lisa’s been through another photo shoot.
While we were watching television in her room, a small group of people came by – two hospital reps, a photographer, and the Social Worker. They were taking photos of patients for use in promotional things like the annual report and Lisa was one of the kids they picked. We’ll be peeking at their webiste to see any of the photos end up there.

2 thoughts on “Cleveland Clinic Day 2 Info

  1. Hi Lisa, Jean, and Mike,

    sounds like songs are a good thing in the hospital. I can just hear you now, singing from your heart like you always do.

    It’s really nice to have a blog so we can know what’s going on with Lisa and Mom and Dad over in Cleveland. Thanks for getting it together.

    We pray that God will bring you peace after the storm.

    take care and enjoy Thanksgiving as much as you can in the hospital,

    kent and family

    It sounds wierd but we will be praying for a seizure to happen soon.

  2. Hey guys!

    I like the blog; what a great way to let us all keep in touch with what’s happening. Any interesting photos you can post (i.e., all the cool wiring)?

    Lisa, maybe you can use this experience to write a new song (like Weird Al). Lee, Anna and I will say a prayer for you.

    Keep updating the blog.


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